More Night Wheeling

 

Sent from a friend from this past weekend.

Another long dog walk.  I'm impressed with Sassy's efforts.

Lili and a friend came with us night wheeling last night.  This is the only picture and he is looking away ;)

The views were amazing.  Hard to capture the beauty.

6 Jeeps.  Five completed the night.  The Gladiator broke under guts and needed to limp out.

Everyone discussing tires and which brand of aftermarket goodies is the best.  Haha.

We hit the trail at 5 and got out around 11:30.  The night was exploratory, our lead wanted to check on trails he hadn't been on for a while.  We were expecting a level 5 or six trail and for the mist part it was but there were a few obstacles that were harder.  Eric loves that part.  I did leap out for one of them.  A wee hike in the dark up a hill.  Lili was helping me navigate.  Eric can't figure put why I don't stay in the Jeep.  It's just too stressful for some of it.

I got an appointment for next week with a gynecologist re: the thickened uterus and the cyst on the ovary. The new surgeon is still hunting down previous surgery files from 2000 and 2005. I don't have a date for the next procedure.  I'm complicated.

The new surgeon said my troublesome fistula was healed on the last exam.  I'm realizing that it hasn't actually bothered me since the last surgery.  Odd.  More questions. There are still other fistulas but they aren't a bother.  Dangerous but not a problem for daily living.

Sassy's longest walk ever.

 

Sundays run took us to overlook Lake Cowichan, drive through mountain top snow.  All over Mt. Brenton and we popped out on Panorama Ridge.

This is Molly.  She's great.  A real dog fix for me.

Stunning views.  The weather was gorgeous.

We found another cabin.  Or more correctly, Eric 2 showed us another cabin.  He really knows the trails around here.  

I love it when we find out houses.  Haha.  This one had tp, hand sanitizer and a view window.

Yesterday Oscar dropped a brake pad on the driveway.  For real.  So Eric was doing an emergency brake replacement yesterday before we headed out again.   Today he went over it all, replaced rotors, pads and put in a new emergency brake pad too.

Lili and I walked the doglets today.  Sassy made it all the way.  Through the neighborhood, along the dike and home.  First time ever we didn't have to carry her most of the way.  So proud of her. She did need some encouragement and a wee break half way. 

Today's adventure.

 

We hit the trails with Jen and her Eric.

Lake Cowichan, Sherk Lake (almost), Kissinger Lake, Nitnat cabin and home around the Lake.

A nice sunny break at Kissinger.

Winched up after a couple valiant tries.

We think this might be the muddiest day yet.  It's in chunks, a full on plant stuck in the hitch and a piece of tree stuck between the tire and rim.  

Elk

Nitnat River

The trail was washed away completely so Eric and Eric just forged a new path.  There were a couple men out there cutting firewood they came to help.  One filmed the insanity.  Georgie (Jen's Jeep) and Oscar were winched up the cliff then Jen and I had to hike up after them.

It is always way steeper in real life than in the photos.

The two strange men came down to help us while Eric and Eric put gear away.  I might not want to talk about the humiliation of strangers trying to haul me up that hill.  I only went to one knee once.  Shockingly made it up there.  It's like I have no clue I'm 60! 

It was at this point that they decided to just plow through.

I didn't catch the first bit of Georgie. The water was deeper than expected. It's possible Oscar floated for a couple seconds.  

We didn't make it.  The snow was too deep further up. Eric backed down.  Other Eric got turned around.  Doing the obstacle backwards was tough.

It was a pretty great wheeling day with lots of exhilarating challenges.

So fun that we're going to head out again tomorrow.  Taking advantage of this fabulous weather.

Thanks Mom, for taking Jia to work for us.  And thanks for the strawberries.  Cherries, strawberries, peaches and blueberries are still my favorite foods.  

This was yesterday.

Oscar is whole again. I love his new look.  Matching cowls in the front too.

 

0 to 4?

 Some answers and even more questions then ever before.  Nothing dire, not horrible news.

No stage was discussed.

The biopsy results aren't back.  So with no confirmation staging can't happen.  He 'suspects' it's Squamous Cell Carcinoma of the Anus. Again, not confirmed.

It's not rectal cancer, it is anal.  That distinction was clarified. So it's not rare afterall.  Squamous Cell Carcinoma is rare in the rectum but NOT rare in the anus.  So that's better than the first guess.  Same outcome but not quite as scary.

He wants to do another sigmoid scope and look at the previous surgical files that are too old to be online.  He is also chasing down what the problem is with the second biopsy.  He called us while we were on our way home.  He had a few more history questions.  I was able to confirm that the pet scan showed no lymph node involvement.

My file is going to a panel of oncologists to look for a plan.  Typically chemo and radiation would be next step but my chrones, scar tissue from previous surgeries, fistulas and history of infection will in all likelihood preclude the chemo/radiation protocol.  He feels the board won't even offer that as an option.

Both surgeons have been clear that I would most likely be fecal incontinant and possibly urine as well with chemo and radiation.  It could also aggravate the Chrones.

For best outcome protectomy and stoma are advised.

He asked what my preferred choice was.  Both are horrific.  I would lean to the ileostomy though.

The pet scan did not light up.  

Read that again.

The pet scan did not light up.

Not even at the anus.

I'm hanging onto that sentence.

The pet scan did show two tumors in the rectum that did not show cancer.

Also a spot in my right breast.  Also not showing cancer but he's sending me to a breast surgeon to be safe.

The ovary showed nothing.

The uterus showed nothing.

The existing surgical hernia can not be repaired.

He said usually a 5 day stay for protectomy but he anticipates complications and a longer stay for me.  Recovery will be many months.  Risk of infection and perineal hernia is high and even higher for me.

Guess how many times I've been told I'm complicated?!  

I'm sure I've missed some of today's low down.  It was a LOT.

We went in there having zero clue.  Anywhere from stage 0, cancer is  gone, you're good to go home, all the way up to stage 4c terminal, you're good to go home.  It was draining getting to this appointment.  We didn't talk the whole way there.

So while not great news and horrible choices.  Both options requiring a lot of healing and lifelong implications it's not the end of this battle. It feels a tad more doable today than the nightmares of yesterday.

Funny moment.  Dr. McPhearson said he wanted to do another sigmoid to see for himself.  Because, although the first surgeon took great notes it's like two different people describing a garden.  So my literal mind immediately thinks he just referred to my butt hole as a garden.  Haha.  Get that out of your mind.

We're home.  Tired.  Eric is napping. I'm on the couch, bleeding  and uncomfortable from another rectal exam.  Yeesh. Dinner is prepped already.  The boys are home in an early dismissal day.  Fei is studying.  Jia is at work.  Lili will be home for dinner after work.

And more appointments.

Prep half done.  Body armor on the way and new tail lights arrived today. $250 fix for the win.  Fairs fair....so I ordered a couple accessories for Onyx at the same time.  A bracket system to hold a water jug for camping beside the back door spare tire.  Soooo exciting.  No more spills inside my wee tiny rv space.  Also new door panel storage thingies.  The stock ones were mesh, that stretched and one had a hole.  Replaced with door panel storage thingies with cup holders that didn't allow me to get the seat up close enough to drive.  After an exhaustive search Eric found flat ones online.

I knew what I wanted for the new dressing room flooring.  It is no longer available.  Sigh.  Another exhaustive search met with a NO everywhere we went.  Today we stopped at Rona.  Anither nope.  Last place local to look was United today and they had a selection of 12' rolls.  The store was dead.  We had time to browse.  We're going with a distressed look fake linoleum.  I wanted fake rock, the fake wood is at least the same colors as the fake rock I wanted.  It's warm brown so I'm happy.  Everything out there is just so grey now.

Luk declines jumping into photos now.  Kai saw the pediatrician this morning.  His health is mostly good.  A bit of watch issues with his liver and cholesterol.  He's 5' 7" now and his bmi is down.  His blood pressure was down too. Still slow on puberty issues but they're coming.  No heart checks or tests until 2027.  Next is more bloodwork and ultra sounds, that he gets every six months.  He no longer freaks out at bloodwork.  Good thing because there is no way I can hold him on my lap anymore!

We went to Costco.  Stocked up on groceries and protein powder, shakes, bars, bread and treats.  All sugar free with protein added.  The boys don't love shopping but it's better than school so they got into it a bit.  Kai enjoyed all the snacks they have to hand out.  We scored finding Auntie Julie in there too :)

Next was the eye specialist in Victoria for Luk.  Apparently this was super boring for Kai.  Haha.  Eric woke him up when the loud snoring started.

No news on Luk's eyes.  He is tested every six months and sees the eyr Dr once a year.  Today was just tests.

Check out the $149 chocolate bunny at Costco.  Who would ever buy this? I wonder how much it weighs?

Luk and Kai were hoping for poutine at Costco but the food counter was closed. So we went to the mall.  Burritos for Kai and I.  Chinese for Luk and Eric.  It was a good day overall.

Is anyone following the story of Punch-Kun, in Japan.  He has a new adoptive Mom.  Awe.  So sweet.  Then news today of another baby pygmy hippo born named Jellybean.  

I have an ultrasound booked to look at the giant mass on my ovary.  Tomorrow I meet with the next surgeon.  Soooo much dread for this appointment.  

I'm such a planner.  Always working on fun things.  Unable to plan is brutal. This time of complete confusion and having no answers or plan in place has been difficult.  Being an action oriented person I'm sure hoping knowing what the plan is will help.