Luk

Luk
Our family.

Wednesday, June 17, 2026

Fishbane Reaction



The lunch time view.

I survived the day.


Human pin cushion.

Today was iron infusion day.

People with ferriton levels under 30 require infusions.  I was a 4.

Two attempts by the new nurse.

We got me set up with the other arm.  I had things to do.  Book loaded.  Movie loaded.  Ear buds charged.  Paper and pen to make a meal plan for camping.

I was a whopping 30 seconds into the infusion when all hell broke loose.

I honestly thought I was having a stroke.  Sweating, dizzy, nauseous, electric current squeezing my chest, pain shooting down my spine into legs and arms. Hard to breathe.  I used my call button.  The nurse came and said I think you might be having a fishbane reaction.

Huh?!
The pain!  I had to breath like I was in labor through it.  Pulse up to 118. They kept asking what I needed.  Who knows?!  For it to stop would be great.  The drip was stopped.  It calmed down in a few minutes.  They left me to sit for 20 more minutes then came back to say trying again was up to me and that although the fishbane reaction is rare, having it happen twice is unlikely.

You better believe I was scared to have the drip start again.  The nurse said that she hoped I'd try again because I'm alarmingly low.

Next go was all good.  Two nurses stayed for a while.

I got nothing done.  There were two ladies in the room with me.  One of them gave me her entire story because I just have that gift.  Her story was crazy, engaging.  However, part of her story included having her iud stuck, ripping a hole and causing prolonged damage and bleeding.  Hence the iron drip.  Also possible infertility.  I said she could adopt.  She said she didn't think the bond would be there without the biological connection.  I WAS NOT IN THE MOOD.  I told her there was no way I  would ever believe that any mother loves their kids more than I do.  Also, EVERY CHILD deserves a Mom.  Off my soapbox. 

So, as usual I was all extra.
I'm definitely adding more and more medical trauma as we go.

The nurse did tell me I handled it very well and I was a very brave girl.  Haha.

Lili drove me.
She had her own trauma while she was waiting.  She spilled almond milk in her back seat and spent the bulk of the wait cleaning.

We had ideas for lunch but I wanted safe food after my ordeal.  Chicken strips and ice milk.  We took our food to a park along the Gorge.  Which was supposed to be a peaceful break.  There was a school group there so it was entertaining but not peaceful and then I got a call letting me know the funding was approved for the Tremfya.

9 phone calls later and we have a plan.  The infusions are all booked.  The consulting nurse, the consulting pharmacist, the prescribing Doctor, the drug manufacturer, the compounding pharmacy in Ontario, the pharmacy in Surrey it will be shipped to, the Infusion center in Nanaimo and the private lab all checked in with me and checked that everyone else had checked in with me.  Then they all had to discuss my covid vaccine and when to do it.

It was ultimately decided it was safe to do this week.

I'm supposed to feel like I have the flu for two days after the iron infusion so I figured it would be a good day for it.

So far I feel fine.  I am tired and my neck is hurting and tight still.  

In amongst all of that Onyx went into the dealership today.  Her brain broke down again.  She got it replaced today.  Scary stuff.  Eric was shocked that it didn't cost much and they had the canbus connector in stock.  So, she is home already.  She drove beautifully.  It's fun to have her there where her beauty is appreciated.  The girl I was dealing with complimented my build.  Jeep thing ;) I told her she'd really enjoy seeing Squirrel tomorrow then.  Lol.  Squirrel's air bag light is on.  So she is having that checked out.

Camping tomorrow.  I have done NOTHING to get ready.

Monday, June 15, 2026

Pride

 

Rv spots at our hotel.  How are they empty?  I'd stay here.

Fun golf is included in the hotel rate.  Lili and I played two courses.
I made not 1, not 2 but 3 hole in one's.


Squirrel got new shoes.
Well, new to her.
Oscar's old knobby 33's.
I was spinning and had gravel flying on a hill.  These are more aggressive and they look better.

Sos clinic.  Teaching Lili how to dial a rotary phone.  

Combs Market

Poppy posing :)

Eric went out yesterday to work with 4wdabc (4 wheel drive association of BC) to do a forest clean up.  40 of them cleaned up 12,500 lbs of trash!!
Eric had a zone, and one of his people found an RV so Oscar got to do a good amount of winching getting the components up the hill to the bin.

They got lunch and had some fun out there.

An rv's remains.  Sigh.
People are gross.


Pride was swamped.
Mom and I hid in the shade away from the people.

We had a great view.


Soooo many people.

The hoards following the parade.  

I think our Entrepid group should enter next year.






We had a great spot.

Saturday, June 13, 2026

Trail day.


We were up early.  1st ones at the meet spot.  I was nervous but feeling ok.  Biggest fear.  Breaking down and holding up the line.

37 rigs.

Eric was gunner and I was ahead of him, following Lady Grey who was also on her first trail day.

And then it happened.
Squirrel said "no more".
The transmission linkage cable popped off the shifter.  It took a hot minute to figure out.  There were a whole bunch of helpers there immediately.  She was fixed in no time.  There were lots of laughs about it all.  I survived the fear.

Eric and Gord showing off.


We made it to the views!!

It was a great first day.

Lunch provided.

Squirrel got some mud!  I played with Gord and we did some puddle jumping.  My fave.

After lunch 7 rigs carried on for some advanced fun.  Stephanie came with me to Transfer Beach and we enjoyed some peace and quiet in the shade.  

Such a beautiful day.
The only picture Eric took of Squirrel today.  There was a butterfly tagging along.
Zoomed.
Hmmm.  Kicked a chair in the wee hours.  Looks worse than it feels but it was pretty great to get my shoes off.


Friday, June 12, 2026

What a day.

 


Our 1st trail.  It was a simple baby trail but we did it and I got it in gear :)

She looks so much like she's actually doing it.  Haha.

Eric was spotting.
I have no idea what the hands are saying though so that's fun in a marriage.

Beautiful.

We witnessed Sasha and Chris's wedding this afternoon.  So fun.

Love.


Dwayne came to visit in his gorgeous Baracuda.

Which was perfect timing so he could help Eric line up and install the banner.  It turned out perfect.

After way too much time trying to figure out my pyscho brain this is the tire cover I finally picked for Squirrel.
Warrior!

More vinyl applied last night.




This couple had 12 babies, then 6 and last night just 1.  Pretty sad.

This morning Lili took me for a cat scan.  It was a bigger process than I was expecting it took two hours.  They gave me a card to take to the emergency room lest the medication before the contrast that is to stop the intestines from moving caused an eye to burst re: glaucoma.  Yikes!  Then my heart rate went too high so we had to wait for me to relax.  I didn't at any point reach relaxed.  A vein was punched right through.  The eye thing was scary. Then afterwards my heart rate hit 120.  They wanted me to stay, I asked what normal is, she said 60.  It did trend down to 107 when I left.  They wanted to keep me but I had things to do.  Lol.

We met Eric and Kai at a park.  He was at a year end party.  I told Eric I was supposed to go home and rest but I felt fine and was good to get the groceries needed for the weekend.  He said no.  Go home, rest and try not to explode. 

Who would ever imagine that one day your partner would say to you "try not to explode".  I can see that this will become a new catch phrase for us.  Funny now, wasn't earlier though.

I rested about half an hour.  I really, really suck at resting.

Lili just called.  Gave me a bit of attitude about me not taking it easy.

I've overdone the day in general.
The medication totally messed with my digestive track.  I suffered today.  My butt is flaring.  The skin is breaking and bleeding.  I've taken myself to bed early but we're up at 6 for my first group run.  I'm slathered in diaper cream and hoping for some healing over night.

Tmi?
Maybe but this is the fallout of f'ing cancer surgery.  It's not easy being me.