I'm too much.

Yesterday was medical calls all day.  One re Luk, one re Kai and too many to count re me.

I don't have it all straight.

1st the new G.I. doctor, Dr. Smith put out his 11 orders.  The calls are happening and everyone is in a time crunch.  It can't all happen at once.  Recovery time is needed in between.

There is paperwork that I don't understand re financing the crazy super high expenses of the new biologic.  Logistics to the order of events.

Today's plan is to do attempt #3 of the consents and financial part.  Then to visit our pharmacy to book an appointment with my guy so he can help direct me.  I'm taking paper and pen.

I need an iron infusion.  Not the regular kind with a round of five visits but the really expensive all in one shot one.  I went online to see my iron numbers.  Which I didn't find.  However I did find the missing hpv results from the pap.  And yes there are indeed hpv 16 cells on the cervix.  That doesn't mean the cancer is back quite yet but it's not good news for sure.

I have sugars mostly under control.  I'll have a perfect day.  No digestion issues, all safe food, sugars perfect and all macros met.  And I'll vow to God that I will eat that every day and not complain about variety or cravings.  Then the next day, the same everything will go nuts.  Spiked sugar and running to the loo.  Then I go through the extra stuff, did I drink too much, or too little, was I too hot, get enough sleep, move too much or have more stress than usual?  

I have officially become too much for myself.  It turns out cancer, diabetes and chrones are just simply too much to realistically manage all at once.

Luk just texted.  His orthotic strap just broke.  I have no clue what to do.  I'm wallowing in bed.  Not ready to run to the school to rescue him.  Eric has Kai at speech.  I suggested he just wear his shoes.  That are about four sizes too big without the afo in the shoe.  Sigh.

The head pediatrician at Children's wants a follow up with Kai.  They think he needs an educational assessment.  So, a forty minute call with his nurse.  Why bother.  So many issues.  She finally asked "do you think he has an intellectual disability?".  Hahaha.  Lol.  Ugh.  Ya.  Diagnosed at 4 and not improving.  So, she met with the psychologist yesterday and got back to me.  She is booking him for Sept of 2027 at age 16 to do a mini visit and will do his transition paperwork then so we will have no issues moving him to adult day programs and funding.  

Just got a text from the resource teacher.  He McGyvered a fix to Luk's afo.

In local news, we have a friend who is rcmp. He (plain clothes) went for breakfast with his rcmp friend (uniform) yesterday.  When they left the Corner House a group of three approached said hey piggies then one of them attempted stabbing our friend, other rcmp jumped in and took the stab to his neck.  He is fighting for his life.  He was stabilized here.  Helicopter to Vancouver.  Induced coma and stabilized again.  Then flown to Ontario.  We wait for news today.  Our friend and his fiance are pretty upset.  Understandably.

One of the three was caught.  15 year old.  The other two got away.

There is ring camera video of the event.  Not released yet.  They have the kid held and hoping to get him to talk.  

Also, three 15 year old boys broke into a house on Sherman and beat a 70 year old couple with a bat.  Our friend responded in less than two minutes to the alarm.  All three were apprehended and since let go.  The couple were taken to hospital, the gentleman has passed.  

What is wrong with teenage boys?!  I want to go get my boys out of school and keep them away from the freaking hoodlums.  

What is happening to our town?!

I'm feeling the stress big time for sure.

It's a camping weekend.  I've suggested Eric set me and Kai up tonight then come home with Luk.  He has projects with the Jeeps and the yard.  But, now I've asked him to work on getting the gate fixed.  I want to start closing it again.  Safety first.

Eric did tell me there is no way our front door would have held out against the girl attacking with such force.  

I haven't packed food or clothing yet.  It is simpler with just Kai.  He eats the same as me.  I do have a meal plan and shopping list.  That's half the battle.

I'll have sketchy service while camping.  That might be a good thing.  Peace and quiet are definitely in order.

Luk is all good.

 

On the way home.

He was a fabulous patient.

His surgery was scheduled for 2:15.  They called at 9:36 to ask if he could come in for 10.  Um.  Maybe.  

The 2.7 kms took half an hour.  City traffic.  

Asleep in a split second.

This was Eric's 1st time at a kid surgery.  I voluntold him to do the o.r. walk this time.  He did great.  Kept joking with Luk all along. Managed a picture in there, so long as no staff were in the photo.  I always hold it together until they're asleep and then I cry in the hallway.  Every time.  Eric did not cry.

Kai was very unaware that Luk had anything going on.  He was all about his new hat, his game and snacks.

Dad on duty this time.

Ok, and this is why I don't adore him wearing caps.  Sigh.  He loves them.  There is nothing in him that believes it should be straight or that it should maybe not cover his eyes.  It's a hard watch for me. Yes, that is a ME thing.  It is still our job to help him present himself in a more flattering way.  The cap might be a short lived thing.  It might have to go missing.  Technically it darkens or shades his eyes which isn't a great thing for Kai's night blindness.  He needs as much light as possible at all times.  

We're home.

School tomorrow to Kai.  Pedicure for Mom and I tomorrow.  Camping Friday.  Eric is outside working on Squirrel now. He has to finish her brakes so she can get out of the way of the trailer coming out.

Day by day here.

Jia is running into Walmart tonight for me wearing her girl hair and makeup to surprise Robert.  I'm in the car in jammies.  I sort of wish I'd pulled it together so I could see his reaction.

I did have a phone appointment with the G.I. doctor today.  He's met the oncologist team and surgeons.  The plan is to attack the Chrones with meds to ensure there is no flares or inflammation in the future that might invite the cancer to grow again.  Mri, ct scan, sedated scope of the small intestine, iron infusions, topical steroids, and a few vaccinations before moving onto a new infusion drug that isn't quite approved in Canada yet.  Stupid expensive so the application for funding is going in now.  It is targeted specifically to peri anal fistulizing Chrones.  I'm not exactly thrilled about the new regime headed our way and new meds scare me a bit but it's clear heading off cancer growth is the better option at this point.  There aren't many side effects. It rarely causes rashes.  Best part, the infusions can be done in Duncan.

This will make me immune compromised.  Scary.  Especially living with Luk and Kai.  Who seem to catch it all!  We might need to set me up better upstairs with a wee little makeshift kitchen so I can avoid the sick people when need be.

Right now I have a touch of a cough setting in.  I'm hoping an early bed and a ton of water will push that off.  I don't have time to be regular sick.

The team has spoken.  This is the way.

Crazy person at our door!

 

After midnight.

The ac isn't working so I called the front desk.  They said someone would come right up. Eric put pants on and answered our door at a knock.

Except....it wasn't hotel staff at the door it was a crazy woman attempting to get past Eric yelling and screaming that her Mom was in here.

I could hear a scuffle while Eric was yelling at her to get the F out and wrestling with her.  !!  My gawd.

He had to physically fight her to stop her from getting in.

For real.

Then he had to hold the door because it seemed likely she might actually break the door in.

I'm trying to call the front desk.  She's at our door screaming and attacking the door.  Eric is yelling at her to go away and yelling to me to call the police.  I did.  We gave play by play reports.  She did the same routine to the room next to us.

We heard the neighbor wrestle her out of their room too.  Hotel security and hotel staff tried talking to her.

Five police cars arrived.  They got her out and we can see them outside of the lobby talking to her.  Rcmp came back up for our report.  Looking to see if she had assaulted us and to see the room and make sure her Mom wasn't here.

Crazy happens everywhere.

And then hotel guy came up.  Set the ac to the same setting we already did.  We have zero hope that it's going to cool down but at least the person that was ramming our door is gone.

The hotel fellow told us she snuck in while someone else used the elevator and he thought she was mentally ill.

I asked the police if she was ok and he said she is safe with them.  

Luk woke up petrified and shaking.  Kai slept through it all.  

Luk and I think we won't be able to calm down enough to actually sleep.

I could do with WAY less excitement.

We can't even ask for a hotel discount since the Variety Club is footing the bill.

Luk Surgery trip.

 

I forgot to get the obligatory ferry pic.  Hotel pic instead.

We kept to routine and went to Dollarama for snacks before checking in.  Kai found a Hot Wheels Jeep Gladiator.  The hotel has a full coffee, tea, hot chocolate station.  Yum.  They are allowing a late check out tomorrow.  Luk's procedure isn't until 2:15.  I requested a priority letter for the ferry home.  It will be a late night.  

Whales.  This just never gets old.

Oliver has recently decided he's my cat.  ?  We're barely friends.  Lol.  He doesn't have any cat manners.  Esmei has been quite dismayed by this unexpected turn of events and the other day she jumped up on me and found him in her spot and attacked him.  So they both got kicked off the bed.  She is a 3rd of his weight.  She is all fluff and he is solid muscle.  Today they appear to be sorting it out.

Jia and Robert are in love.  They spend every second together they can and talk on the phone the second they're separated.

So cute.

They're working on matching up their work schedules.

Miss Sassy likes the bed.  I guess we should/could take down Finn's attractive safety cardboard.

So, yesterday, a neighbor just up the hill from us dug up a gas line.  The big 14" one.  He didn't call 811 first.  

Eric heard the hissing while he was outside and knew.  Fire, police, North Cowichan and Fortis Gas were on site teally fast.  Some people were evacuated.  We were not.  It took some time to figure out but Google Maps and Hey Google let us know we were 650' away.  The evacuation circle was 350'.  Phew.

It took hours for the spillage to stop.  It was WAY louder than I would have thought it would be.  And the smell, oy, so bad.  I did have a headache.  You could smell it at the boys school and Luk had a headache as well.  We weren't sure we could get out with the driveway blocked.  We loaded into Oscar, Eric had full intention of driving down the rock retaining wall.  Haha.  He's probably a bit disappointed that he didn't have to.  It took a few hours to fix.  We picked the boys up from school, met Lili and went for ice cream and got Luk a haircut before the road was open again.  I'm dying to know how big the fine will be for dippy.  

Finally, back on trails.

 

Majestic.

Oscar and Georgie.

Exploring.

We went in at Campbell River and played in rock gardens, then popped out near Comox.

Look what I found in Value Village in Campbell River!  My doggos are just a wee bit spoiled.

Pink rose bedding and an outside pink foot mat for the Squirrel camp set up. Score. 

She is still on blocks.  There isn't enough time in a day to get everything done.

Luk has a chait surgery on Wednesday at Children's.  Eric and Kai are coming with us this time.  We leave tomorrow.

We camp on Friday for our anniversary weekend. We need more hours in a day to keep up to ourselves.

Mando and Grogu.

 

We all loved it.  Eric came with us.

I had a heck of a time sitting of course. The movie is 2 hours and 12 minutes. I was uncomfortable at around 10 minutes.  

From last night at Trooper.  

I thought this population map of BC was interesting.

Eric worked all day.  The back deck is sparkly clean.  That's exciting. The outdoor living room is almost ready.  We just need the cushions brought out.  He also painted Squirrel's front bumper.  

Tomorrow Eric and I are taking off in Oscar for a run in Campbell River.  I can't wait for some forest therapy.  It's been WAY too long.  

Trooper!!

 

Etic wasn't keen today so Lili took his place.  

They didn't disappoint.

It was super duper loud.

Which made singing at the top of my lungs the whole time possible :)

I had a fabulous time aside from the sitting part.  

Lili wasn't enamored.  Haha.  Apparently I didn't play enough of my music when they were young.  I focused too much on kid music.

Thankful for time spent with my kids.

Here I am grabbing all the fun I can, wearing a diaper full time, hoping for the best while singing and dancing with 500 other old folks reliving our youth for a couple hours.