The lunch time view.
I survived the day.
Human pin cushion.
Today was iron infusion day.
People with ferriton levels under 30 require infusions. I was a 4.
Two attempts by the new nurse.
We got me set up with the other arm. I had things to do. Book loaded. Movie loaded. Ear buds charged. Paper and pen to make a meal plan for camping.
I was a whopping 30 seconds into the infusion when all hell broke loose.
I honestly thought I was having a stroke. Sweating, dizzy, nauseous, electric current squeezing my chest, pain shooting down my spine into legs and arms. Hard to breathe. I used my call button. The nurse came and said I think you might be having a fishbane reaction.
Huh?!
The pain! I had to breath like I was in labor through it. Pulse up to 118. They kept asking what I needed. Who knows?! For it to stop would be great. The drip was stopped. It calmed down in a few minutes. They left me to sit for 20 more minutes then came back to say trying again was up to me and that although the fishbane reaction is rare, having it happen twice is unlikely.
You better believe I was scared to have the drip start again. The nurse said that she hoped I'd try again because I'm alarmingly low.
Next go was all good. Two nurses stayed for a while.
I got nothing done. There were two ladies in the room with me. One of them gave me her entire story because I just have that gift. Her story was crazy, engaging. However, part of her story included having her iud stuck, ripping a hole and causing prolonged damage and bleeding. Hence the iron drip. Also possible infertility. I said she could adopt. She said she didn't think the bond would be there without the biological connection. I WAS NOT IN THE MOOD. I told her there was no way I would ever believe that any mother loves their kids more than I do. Also, EVERY CHILD deserves a Mom. Off my soapbox.
So, as usual I was all extra.
I'm definitely adding more and more medical trauma as we go.
The nurse did tell me I handled it very well and I was a very brave girl. Haha.
Lili drove me.
She had her own trauma while she was waiting. She spilled almond milk in her back seat and spent the bulk of the wait cleaning.
We had ideas for lunch but I wanted safe food after my ordeal. Chicken strips and ice milk. We took our food to a park along the Gorge. Which was supposed to be a peaceful break. There was a school group there so it was entertaining but not peaceful and then I got a call letting me know the funding was approved for the Tremfya.
9 phone calls later and we have a plan. The infusions are all booked. The consulting nurse, the consulting pharmacist, the prescribing Doctor, the drug manufacturer, the compounding pharmacy in Ontario, the pharmacy in Surrey it will be shipped to, the Infusion center in Nanaimo and the private lab all checked in with me and checked that everyone else had checked in with me. Then they all had to discuss my covid vaccine and when to do it.
It was ultimately decided it was safe to do this week.
I'm supposed to feel like I have the flu for two days after the iron infusion so I figured it would be a good day for it.
So far I feel fine. I am tired and my neck is hurting and tight still.
In amongst all of that Onyx went into the dealership today. Her brain broke down again. She got it replaced today. Scary stuff. Eric was shocked that it didn't cost much and they had the canbus connector in stock. So, she is home already. She drove beautifully. It's fun to have her there where her beauty is appreciated. The girl I was dealing with complimented my build. Jeep thing ;) I told her she'd really enjoy seeing Squirrel tomorrow then. Lol. Squirrel's air bag light is on. So she is having that checked out.
Camping tomorrow. I have done NOTHING to get ready.





























































