Luk has a lot of appts. I get calls telling us who when and where. So I was trying to send Eric to this appt. today to the urologist on his own. Mom thought I should go, good thing because it was to a neurologist not a urologist! Big difference! ! Finally a Dr. to figure out the whole picture! She has ordered a MRI (sedated) of his head and his spine. Finally. Such a relief. Important to have a base point for when things turn. She is going to set him up with Children's Spina Bifida clinic too. To make things easier for when things turn. He could easily need a new shunt or have his spine tether one day. She felt his leg use was unusually good. He is weak but movement is normal. She's put him on daily fibre. Hard to dose kids with sb and get it right. So, we're starting daily laxitive on day one of the holiday! Yikes. I gave him the first dose at bedtime but I split it in half. The appointment was an hour. A LOT of questions. I'm glad I took the day off and was there.
Jia stayed with Gramma so the rest of us had a nice peaceful drive and late lunch at Spaghetti Factory. Gramma helped Jia set up a lemonade stand. She's been talking about wanting a stand to sell things for two days so she was simply delighted about her stand today. Plus she made real money for pretend lemonade!
We took the long scenic route home and at Cattle beach we found a piano set up. Very cool. We stopped to listen to a lady play but she was just finishing up so Lili and Fei had a turn. A few people gathered and one gentleman was asking questions about composers and their lessons. He praised each of them and clapped loudly. Then he sat and played. Wow. Very accomplished. The piano wasn't great but the setting, oh my, breath taking. Lili and Fei sat watching him in awe. A bliss moment. He suggested we find 'Elton'. We drove further and found piano #3 (Elton) by the yacht club. Lili got in the car and said talking to him was like being in a secret club :) Love.
