Luk

Luk
Our family.

Wednesday, February 9, 2022

Children's Again

We're back. Seeing the surgeon today. He looks great.  Cleared for back to school and ready to use the cecostomy. Then a meeting with our ostomy nurse.  Sarah. She's great.  I think we sort of know what we're doing.  
Jia came with us to enjoy the food and hotel.  Her and Luk get along well when it's just the two of them. Mom came for the ride.  We dropped her and Poppy with cousin Linda.
I let them loose in Dollarama for hotel snacks :) That was fun to watch.
Jia's ok with the trip so far.  We can predict that she'll be less than thrilled tomorrow with getting up at 6am.  Then she gets to see Luk's four hour spinal cord injury clinic.  8 appointments.  It's exhausting.  I've already promised Starbucks for lunch.  Then we're back to the clinic we were at today for urodynamics at 1. The kids asked today what that is.  Now they're both freaked out. Catheter into his bladder to measure how much liquid his bladder holds.  So that we can get the medication correct.  Cracking jokes wasn't the correct tactic.  One minute at a time.  Luk hasn't had this test since he was four.  He clearly no longer remembers it.

The drive here was ok but parking was a total gong show.  We circled for 20 minutes. The placard helped. We had to park at the front and it was open again!!  We were allowed with other people in the elevator. There were teenage volunteers here again.  Can't wait for the world to open up again.