We were an hour early to check in. Prime parking, traffic not too bad. We had a bit of fun playing with the fabric on these chairs.
I spy.
It's time.
This is 1/3 of the surgery room. Staff of 9 in there all off to the right. They're not allowed in pictures.
Luk had a child life coach come and discuss options and he chose a mask to go to sleep rather than iv pokes. He also got to pick the chap stick flavor to rub inside his mask to help the bad smell. He went with cherry coke. Children's is amazing at some things.
It never gets easier watching them go to sleep. Luk was so brave. I didn't bawl this time. So I might have been a bit braver than usual too. Lili stayed with us today and was very helpful. Surgery was delayed a couple hours so the three of us had some good laughs reminiscing about old funny family stories.
He was awake pretty quickly!! He was adamant it was a few seconds but it was closer to a half hour. The surgeon said it went perfectly. His new chait tube is smaller than we expected and looks fabulous compared to what he's had for the last three months. We're allowed to do a flush tonight. I'm completely nervous. Learning curve on my own, in a hotel. Ekk. Also I got supplies and a little lesson today about what to do if the tube falls out. Not gonna' lie. That is one of the scariest things I've ever heard of!
Luk isn't in any pain yet. We're back at the hotel. We've had dinner. It was an exhausting day. Lots to process. Home tomorrow.
