Always good to get home. Kids are all so excited. Kai was yelling LUK, LUK and big hugs. Jia was yelling MOM, MOM.
Clinic was 3 1/2 hours. 8 appointments. It's an overwhelming way to do things but way better than making separate visits. A wealth of information.
Little Mr. needs leg braces. He is NOT going to like them. He'll need physical therapy too to monitor the braces.
Overall he's in good shape. No big changes. The braces will get him more upright and help with the fatigue.
His MRI from the summer was great. I got lots of information about future toileting solutions. There are some surgeries available now for him. Children's has a new guy from Ontario that is performing them. So that was exciting news. I thought we might have to look to the states.
We met some more kids with Spina Bifida and joined a support group.
On the home front Eric got a call today from the 'at home' program with the government and both boys qualify!! We don't have many details but we know enough to know it's big major news. So excited.
