This cake pop was earned. How he is smiling is beyond me. Poked and prodded all day. Millions of questions.
Today was absolutely over the top. Luk has had some personality changes. Things to note. Everyone on the team has ideas. From depression, anxiety, medical trauma, preteen issues, shunt failure, possible seizures, neurological issues, could be just tired and grumpy and the overall consensus is that it's all sounding like ADD. Next, his cord is tethering. The lengths we're going to aren't enough. We're now upgrading his afo's (leg braces) to articulated ones. He's going from two hours a day in afo's and walking with orthotics to 20 hours a day in the new afo's. He's doing a sedated botox injection in his calves to release the muscles and then casting for a couple weeks. Then down from 24 hours to 20 hours. He is NOT impressed. The physical therapist and orthopedic surgeon think that it's possible to avoid surgery if we hit the problem hard now before his big growth spurt. Then the urologist wants to start cathing now so we're waiting for an appointment for an all day lesson. Last urologist wanted circumcision first. This one today is the team leader and after checking Luk out declared him fine to start now. There was no neurologist in today but when I mentioned his zoning out, forgetfulness and general rudeness they considered that to be serious and brought the neurologist in. We'd met him before. He thinks there could be some seizing and wants another mri to rule out basic shunt failure. A request is going in to the gait clinic for a recheck. A request is going in for a full mri. A request is going in for a neurological assessment. A request is going in for a cathing lesson day. A request is going in to Queen Alexandra for new afo's. A request is going in to surgery for the botox treatment. I'm seeing 5 trips to Children's coming up and 3 to Queen Alexandra. Oy.
Overloaded!!! Poor Luk.
We had planned to go to the mall for lunch but I really wanted to go home. We made it on the 2 to Swartz. It was a mistake. It then took us two hours to do the drive. Much of the drive at 2 to 20 kms an hour. So painful.
I am not a city person. All three of us were so happy to be home.
Eric managed to do some work on the Big Cheese while we were away. The broken window is out. Patched with a plastic board and the roof is prepped for the solar panel. It's not pretty quite yet. I'm still looking for artistic ideas to cover the old window hole on the inside. We could put up the existing curtains but I'd rather it doesn't look like a fake window. Something more purposeful.
Little shake up at school with classroom placements, teachers and ea's. The boys aren't fazed at all.
