On the way home.
He was a fabulous patient.
His surgery was scheduled for 2:15. They called at 9:36 to ask if he could come in for 10. Um. Maybe.
The 2.7 kms took half an hour. City traffic.
Asleep in a split second.
This was Eric's 1st time at a kid surgery. I voluntold him to do the o.r. walk this time. He did great. Kept joking with Luk all along. Managed a picture in there, so long as no staff were in the photo. I always hold it together until they're asleep and then I cry in the hallway. Every time. Eric did not cry.
Kai was very unaware that Luk had anything going on. He was all about his new hat, his game and snacks.
Dad on duty this time.
Ok, and this is why I don't adore him wearing caps. Sigh. He loves them. There is nothing in him that believes it should be straight or that it should maybe not cover his eyes. It's a hard watch for me. Yes, that is a ME thing. It is still our job to help him present himself in a more flattering way. The cap might be a short lived thing. It might have to go missing. Technically it darkens or shades his eyes which isn't a great thing for Kai's night blindness. He needs as much light as possible at all times.
We're home.
School tomorrow to Kai. Pedicure for Mom and I tomorrow. Camping Friday. Eric is outside working on Squirrel now. He has to finish her brakes so she can get out of the way of the trailer coming out.
Day by day here.
Jia is running into Walmart tonight for me wearing her girl hair and makeup to surprise Robert. I'm in the car in jammies. I sort of wish I'd pulled it together so I could see his reaction.
I did have a phone appointment with the G.I. doctor today. He's met the oncologist team and surgeons. The plan is to attack the Chrones with meds to ensure there is no flares or inflammation in the future that might invite the cancer to grow again. Mri, ct scan, sedated scope of the small intestine, iron infusions, topical steroids, and a few vaccinations before moving onto a new infusion drug that isn't quite approved in Canada yet. Stupid expensive so the application for funding is going in now. It is targeted specifically to peri anal fistulizing Chrones. I'm not exactly thrilled about the new regime headed our way and new meds scare me a bit but it's clear heading off cancer growth is the better option at this point. There aren't many side effects. It rarely causes rashes. Best part, the infusions can be done in Duncan.
This will make me immune compromised. Scary. Especially living with Luk and Kai. Who seem to catch it all! We might need to set me up better upstairs with a wee little makeshift kitchen so I can avoid the sick people when need be.
Right now I have a touch of a cough setting in. I'm hoping an early bed and a ton of water will push that off. I don't have time to be regular sick.
The team has spoken. This is the way.






