A calm moment between running errands today.
My computer died through the night. It started turning itself off and on non stop. We had to unplug it. We took it in to the guy who built it 12 years ago. He fixed it. The power converter went. Phew. No files were lost.
There's just not enough fun stuff happening right now. There are WAY too many appointments and meetings happening.
I just found out my root canal and crown that cost 5000 has to be surgically removed for 1000 and then an implant and crown for another 5000. Owe. I'm waiting for a surgery date.
The eye specialist is saying it's time for my cataract eye surgery within a year. Omg. Pure torture. I made the mistake of going to Dr. Google. The glaucoma is holding though.
I have been waiting around four years for a surgical consult for a fistula. I just got an appointment for the end of Sept.
So, I'm feeling sorry for myself. Mouth, eyes and butt pain coming up.
Eric goes in a week for three biopsies on his back.
I had an appointment today with Kai's pediatric Endocrinologist. Big things. He isn't doing great metibolicly. He's in a world data base for his syndrome. We just found out that somewhere in the world, someone has created a medicine specifically for his syndrome. He qualifies for it. There is paperwork involved and it won't happen overnight. I'm not sure who funds it, but not us. It's not in pharmacies and would be sent directly to us. It's very exciting. And overwhelming. I know very little ;) More learning curve for all of us. Biedl Bardet is incredibly rare so this news is definitely surprising.
There is a lot of divide and conquer going on. It's crazy how many times we leave the driveway some days. I feel like we're behind in all areas. I check my calendar a few times a day because I constantly feel like we're going to miss something.
Eric is making great progress on the closet.
Mom is going to attempt car camping in her car with me this weekend. So that's a fun distraction. The kids have no interest in coming.
I have an appointment with my Endocrinologist tomorrow, which I always dread. It's just a matter of time before she moves me onto insulin and I'm really, really, really dreading that too. There isn't a good scenario here, it all just sucks. Diabetes sucks. Update, all numbers were improved again. No insulin quite yet. Yay Ozempic.
