Luk

Luk
Our family.

Monday, June 29, 2026

Tremfya Day

 

It all went well.  No issues.  My nurse also has Chrones.  We had some fun discussing our theories.  

So, now I'm immune compromised.
The goal is to slow down my over active immune system.  Targeting a particular protein.  So precise.  

So far there have been zero reactions.  I did pick up the right Benedryl on the way to the camp site though.  Breathing issues are common and I'm to get to emerg asap if I notice anything.  Scary stuff.

I ordered the fidget squirrel thinking it was attached to a lanyard.  Things on Temu are not always clear.  But, it turns out it's actually a phone handle.  Fei set me up.  It's fun.  I have definitely used it to fidget.  We'll see how long it lasts on my phone ;)

We're at the campsite.  However we suspect Luk might have another uti. Super common with cathing.  The pharmacist can only prescribe antibiotics to women.  Seriously.  That was the stupidest thing to hear. I then called his pediatrician and she is away until July 21.  Then I called the family doctor and his office closed at 3.  So, Eric took Luk home tonight so they can hit the walk in clinic tomorrow morning.  

Our medical system is soooo broken.

It'll be a quiet night for Kai and I.
Which is perfect since I'm supposed to sit still.