Luk

Luk
Our family.

Wednesday, September 18, 2013

Life carries on.


Keeping Luk up top on the blog :)

Dumbo, Mickey, Minnie, Donald and Pluto.  Superior pancakes from Mr. E.

On Sunday our neighbors son came over and told Eric and Scott that he planned to sit on our bank, in the light from our house and shoot a buck.  Seriously.  Eric told him no but he responded with 'I'm just letting you know so you don't report the shots'.  So, Eric promptly reported it before there were shots.  He spent hours and hours on the phone on a Sunday afternoon with RCMP and Conservation Officers.  In the end after many phone calls, they were able to reach the young man and let him know that NO WAY could he bait them with apples, hunt at night or shoot anything within 100meters of a home.  Plus there is NO HUNTING in our area.  Right in front of our giant picture window in the kitchen.  How on earth did that young man feel any of that was OK.  My goodness, kids in the kitchen getting their cookies and milk for bedtime snack, watching one of their beloved deer from the field dropped by a gun.  I'm still horrified.  Even in  the nicest of neighborhoods there are whack-a-doodles.

Lili got a referral to a spine clinic at Queen Alexandra in Victoria.
Beautiful setting.  Waiting room was amazing.

Lili is now having her scoliosis monitored at the Queen Alexandra.  She'll be going every six months.  The new Dr. we met was awesome.  He doesn't feel there will be back surgery but wants to keep a close eye on it.  He has told us she likely has only one year of growing left.  He works with all bones and was able to look at her feet for us.  He isn't worried about the clicking but did say that there are some bones in her feet that are fused and she will be looking at surgery for that down the road.  For now, continue with expensive runners and keep him posted about pain.  He didn't restrict any of her activity at this point but was clear that Highland isn't helping any.  She then met with physio who taught her some exercises to help with the pulled muscle on the opposite side of her curve. 
 
Oh, and the nice new Dr. is a part of the neuro team that does spina bifida clinics, so we told him about Luk and he said he'd see us soon with him.

Autumn Moon Festival is tomorrow.  We're meeting up with a few people and doing the Crofton walk and having our round snacks and tea at the end.  I bought these lanterns a year ago, finally got to putting their first name characters on them today on my lunch hour.  I think they turned out fabulously, can't wait to show the girls.
 
Not much new on the Luk front.  I had moon cakes, cameras and a family photo sent to Ningdu.  Paid express so that the moon cakes would arrive in time for Autumn Moon. 
 
I'm not sure that we mentioned Luk's special need during the referral.  I'm shocked that no one has been asking.  Thank you for letting him just be a kid first.  His need is that he has Spina Bifida.  We have no idea what his level of needs will be.  Reading in depth is scary.  I've joined a couple support groups.  I think we're well versed in what worst case scenarios could be and we'll continue to hope for the best.  One day at a time.  Drs here aren't concerned when looking at his file.  We're not dealing with a sick kid or one that has shortened life span.