Tswassen Mills.
Luk says they are creepy. I think cute.
Kid is cute too.
Four hours of back to back appointments were exhausting.
We got to the mall and napped in the car for two hours before heading in for a late lunch.
Queenie. The chillest dog ever.
It was sibling appreciation day again. We didn't have any sibs with us and Luk wasn't interested even a tiny bit in any of the fun.
Tin Tin.
I enjoyed a bit of pup love and therapy. Luk hung back, again, not interested.
The day gave us a ton to process. He's 13, so transitioning to adult care begins. The head of the team will take over at 18 in his own practice. We like him so that's thrilling. His orthopedic surgeon that has been with him since age 2 is retiring so that was sad. He needs new leg braces. He's grown two inches. His strength and muscle tone has improved and is above average. More exercises added for intoeing support. He needs surgery for his chait replacement and they are trying to find a qualified radiologist surgeon on the island for us. A part of transitioning. His entire cecostomy routine is changing. Mainly because of supply issues. He has never needed a shunt revision which is rare and new info indicates that if kids reach 15 years without revision they typically won't need one. Apparently the bodies start to use the path from the shunt for csf drainage on their own. Very cool. Overall he is doing great. We get to move back to once a year visits.
I mentioned to the head pediatrician that we have a dog with hydrocephalus on omprezole that reduces fluid. Also mentioned my theory about vets no longer recommending Tums to pregnant moms so dogs now lacking folic acid ( lack of folic acid directly related to human clefts ie: spina bifida and hydrocephalus). He did a quick check on his phone and looked at me in complete shock. I said, "ya, I've done a lot of reading, it's my million dollar theory, you can run with it". We laughed but it would be cool if there is a non invasive way to help kids possible.
